Met the doctor at the door today, and it seems Bens Kidneys are underdeveloped and has not been producing enough red blood cells to keep him going. Around now they will be giving him a blood transfusion. It was such disheartening news, he looked pale and very tired. Also his stomach has grown again, this time with gas and we are waiting for a burp, they have stopped feeding him temporary until the stomach goes down.
We did our best to sing him Nursery Rhymes but when we are so emotional it is easy to break into tears. The lyrics of these songs are usually so tender, it just screwed us up at every attempt. Whenever we do cry the nurse tells us to 'Control Yourself'. Its funny she is so sweet and caring but goes militant whenever we bring on the tears. I think she says it so we learn to be stronger for Ben. The singing plays a massive part in our connection with him, as we can only touch him a little bit. Cuddling has been delayed again due to his new situation.
On a more positive note, he looked at us today again, had a bit of a stretch and made a coo noise. Still off the ventilator which is good.